The Brady Colbert Foundation

Our Mission

The Brady Colbert Foundation is a non-profit organization dedicated to helping families cope with diagnosis, care taking, and death of a terminally ill child by providing a variety of resources in an effort to ease the emotional stress and frustration of life's transitions.
About Brady Colbert

At 32 weeks, what was a normal pregnancy became anything but normal. A routine ultrasound found that Brady’s head measurement was larger than it should be for that period of growth. We were referred to a high-risk pregnancy clinic to have more extensive ultrasounds completed. Confirmation of a few abnormalities came from our next ultrasound and encouraged us to look outside our ommunity for a Children’s hospital that could adequately deliver and care for our soon-to-be newborn.

Brady Thomas Colbert was born on May 8, 2007, at the Brigham & Women hospital in Boston, Massachusetts. Before any official diagnosis, he was born with clubbed feet, polycystic kidney disease, a brain abnormality, and a possible heart abnormality. A week and one day after he was born he was diagnosed with Zellweger Syndrome, the most sever of four types of peroxisome biogenesis disorders. We were told he would not live to be more than 12 months old.

After being in the NICU for 3 weeks, and with an extraordinary amount of help from the NICU staff, we brought our little Brady home. The next 5 months were filled with love, joy, challenges, stress, and at times a few tears. We encouraged our 2 year old son to be the best big brother he could be; not realizing this would come so naturally to him. William was a pro at comforting Brady, especially when he cried; giving Brady what he called “magic kisses.” We tried spending as much of our time as a family making memories that will last our lifetime. This included, going to a Red Sox game, going to Universal Studios, and taking Brady out into the world for others to love and enjoy.

On October 11, 2007 at 12:15 am Brady passed away. He was 5 months old. It was not an easy time for any of our family members or friends, but our experiences have encouraged us to reach out and help others.

Every year we honor Brady's birthday with a balloon launch where we write notes to him on our balloons and send them up to him in heaven. Here is a video of our last launch.

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